Thursday, December 29, 2011

Happy new year

Just 3 days to go to herald the new year. We have yet, again embarked on a new therapy for Ramam ,the NAET-Namboodiripad allergy elimination technique with the same fervor, hope , enthusiasm that marks the beginning of any activity. More on it,as it progresses.
Ramam just recovered from yet another out of cold and fever,and that put a stop to all our Christmas holidays program. I was tempted to look up some of the therapies that parents'at Rama's school have joined, but a reconsideration of his existing schedule made me think twice. Given that there are are only so many hours in a day that you get to work with the child, one doesn't want to get it fragmented by doing too many things. Set small selected goals, work on it. And then move on to the next set of goals. This realization has dawned quite late on me. I shall probably work on that. Many a times, mothers tell-me when the child is capable of academics, shouldn't he be encouraged on those lines. I am not quite-clear on this. I feel if Ramam isn't able to recall what happened in the school, what is the point in getting him to do academics. It is more important to work on these aspects, for academics ,if it has to come will come definitely much later. krishnana Narayanan spent years in a boarding school ,not learning much, but picked up much later when he started home tuitions with his father.
Anyway as parents ,one is always wondering on the choices that we make for our children. We want to put this allergy issue behind us, and that explains the NAET ,that we just started yesterday.Picked up so more interesting apps for Ramam. The has a good pick of apps for children on the spectrum.
Wish you all a wonderful year ahead.

Friday, December 9, 2011

World Disability Day

As part of the world disability day, on 3rd December, the Bangalore chapter of the autism society of India (ASI) had organized, a visit to Sarla Birla Academy- SBA , which is a residential school for boys . A group of 27 children set off chaperoned by dads, moms, teachers and of course Ruby, the new secretary of ASI. Five special schools participated in this program. The objectives being, one to spread awareness of this Autism spectrum disorder amongst the youth, secondly give the children an opportunity to interact with their peers.

We set out in two buses, and reached the school around 11.30. We were warmly welcomed by both the students and staff alike. The students who welcomed us were from the higher classes the eleventh and the twelfth grades. On arrival we were served refreshments outdoors. I shall be doing injustice if I were not to talk a little about the campus. Fabulous courts, sprawling acres of greenery, a stone garden… the works. The students were extremely courteous, doing everything possible to make us feel welcome.

Ramam kicked off his day by shooting some balls in the basketball court. The refreshments were followed by a welcome address, screening of a Tom and Jerry movie, an impromptu performance by two of our children on stage. This was followed by some fun activities, bursting balloons, colouring, drumming. Each kid was to be assigned a buddy, who was to interact with each child, but as things progressed, they moved in groups.

A lavish lunch followed, a formal vote of thanks was proposed by Saleem, the treasurer of ASI and Ruby. The whole idea appealed to all of us. It would be a sad thing if it would be a one –off event. Probably out of 20-30 students who interacted with our children at least a handful of them would be keener on carrying forward these interactions. I hope it doesn’t remain a one day event on their social calendar. Forget the frills, just shooting some balls into the basket, kicking the ball around, singing, doing all the fun things as chasing a balloon…... (It is more about our kids, because the students have probably outgrown all of this). A bonding is only possible, for our kids only when the frequency of such interactions is higher. Having said all that, it was a fun filled day.
A special word of thanks to Ruby, for having organised it. This is the second such event organized by her that I was attending. The first one being organized by her foundation ALFAA (Assisted living for autistic adults). In both these events she had catered for the children where there were events that they could participate and win prizes. I wouldn’t want to attend a talk knowing Ramam  is sitting in some corner, and is lining up.

Tuesday, December 6, 2011

Into December

I have not been blogging for quite some time now. At Ramam’s end things are moving at a snail’s pace. He is showing a lot of interest in playing with ball, basket ball, football….. Enjoys throwing and kicking them around. He has been off the diet since Diwali. There have been no obvious changes but not very sure if his verbalization has come down.  
                                         Ramam participated in Kalangana 2011, a very dismal performance. This was our first exposure to the event although I have heard Sumathi speak about it.  Among the hundred thousand children on the spectrum, probably a very small percentage gets an opportunity to go and participate in a competition. It is not about winning, but more about participation. In that sense Kalangana is a blessing. That brings me to Sukesh performance on Asianet (a regional channel) in Star Singer. In a request by the viewers to know more about Autism, Sukesh’s mother grew emotional and said that she would not be able to sum up the complexities of the problem even if she spoke for 2 days about it. Understandably so, it is the mother of all problems. But, in hindsight, I felt she had a very captive audience and it would have been a wonderful opportunity to spread awareness of the problem.
                                          Life goes on, as usual with my daughter throwing in some surprises and disappointments along the way.  Went to Sarla Birla Academy, a residential school for boys on the Bannerghatta road in lieu of the World Disability day. Not much happening in Bangalore on that day. More in my next post.

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