Thursday, June 24, 2010

More websites

I had written an earlier post on autism friendly websites. Here are some more for children in the age group 4-6.Thank you, Gina for the link. Have fun. Ramam enjoyed the fruit shoot games on this site.
Check out my earlier post for autism friendly websites

Dr. Nandini Mundkur

 I have been getting some google  searches looking for Dr Nandini Mundkur.  She is a developmental pediatrician. She is with the Centre for child development and disabilities Bangalore. She with her team are a group of professionals trained in ADI_ autism diagnostic inventory and ADOS autism diagnostic observation schedule. They are into early intervention. She can be contacted at 080 23342035 or 41205034 .Their website is She is also on the panel of  consultants,  at  Samvad, Institute of speech and hearing, Hebbal, Bangalore.

Monday, June 21, 2010

More resources in Hyderabad.

Little Hearts Hospital at  Masab Tank. The  phone  number is  23372036. One can check for resources with them.
Ranjeeta, she is an occupational therapist, who has specialized in sensory integration issues. Her number is 9441349168.
         Also you may check my earlier post on schools in Hyderabad for more details.

Tuesday, June 15, 2010

All Clear

Technically speaking or rather, clinically, Ramam is out of it. The blood test for Ramam has ruled out allergies towards gluten and milk. The floodgates have opened, so as to speak. My daughter has checked and rechecked with me in the last 2-3 days that is it ok for him to have noodles, wheat and milk… in that order. Can he eat dahi chawal is her BIG question. For a boy who loved his rice and curds few years back, he turned it down yesterday after my husband offered it at dinner time. After much cajoling, he hesitatingly tried a spoon of curd and fell in love with it all over again.
                    Does this mean it is the end of GFCF for him and “US “too? Is it time to ring down the curtains   for jowar rotis, akki rottis, and raagi   parathas .Does it mean yes to panner at home? Is it time to watch out for Dominos flyers? Does eating out mean more than dosas, vadas and rice?  Is it ok to have a 5 star, a black forest pastry, pani puri, a gulab jamun occasionally.  And what about ice creams?  Last time Ramam left his orange sorbet from Baskin Robins half finished. Enough is enough is what he seemed to tell us.
                 The answer is both yes and no. We are treading cautiously, almost carefully. We are in the same quandary as when we embarked on the diet. Did GFCF work for him? Yes it did, for sure.  At least that is what we believe. It made life much better. So why would we want to revert back. Two years of reading up on GFCF material, recipes, experiments in the kitchen, maybe all of that would be coming to an end (not this blog! though, that is why I diversified long back, writing everything possible from therapies to teaching methods). But, seriously not being on the diet gives him a better opportunity to socialize. Attending a birthday party, a social function in school, sharing with his class mates.  We don’t want to overdo it either. An occasional indulgence is ok probably when we eat out or socialize. Maybe I would reintroduce buttermilk in his diet though not milk. That reminds me of so many recipes I turned down because they needed buttermilk in the preparation. I would continue to use GFCF flour for baking but probably use butter if the recipe calls for it. PARTIAL  ADHERENCE, that is how I would like to put it.
                     In the last two years we never attributed any of his behavioral issues to his diet. But then questions are already being raised, Is he stimming a little more because he had three spoons dahi last night. Is he constipating because of bread? .Guess we will never be free of these nagging doubts now that we are off the diet. It is a vicious cycle. One doesn’t want to upset the applecart when everything is going fine. One can’t have everything anyway.

Monday, June 7, 2010

Sunfeast marathon

I want to thank all the sponsors who have contributed to this cause through online donations and cheques. A big thank you to all of you once again.Here are some photos of the marathon.Ramam and Isha did a 4k where  they joined the majja runners.I beamed proudly as some runners cheered us on saying both  ur kids are running.Unfortunately a beaming self is not in the photo.The next picture is  taken right after the 4k when they joined their father after his 10k.The third one, of course  recouping after the run.

Ramam turns ten

June 6th Ramam turned 10. We had a bday celebration with just the 4 of us. Went for a movie, bought some gifts, and ate out. We watched king khan in My name is Khan at home!  This was a different bday for him from his earlier ones with no bday party, no cake cutting. He picked up and answered all his birthday calls himself this time. A first! .We had done a blood test at the Apollo hospitals for allergies on the 5th.  We are hoping that the tests come negative for the “THE” allergens gluten and casein. We are yet to receive the test results, and then probably that would be his birthday gift. At school he is in  a new class with a new set of teachers.  Wishing that he has a great year ahead of him.

Google Autism Search Results